Parental Concerns about the Future of Children with Autism: A Qualitative Study in Iran

Abstract

Introduction: Regarding the growing trend of autism spectrum disorder, the complex and lifelong nature of it and concerns of parents about the life experience and caring for an autistic child, especially with regard to their future life, to provide a suitable environment for the child to enjoy human rights in life is one of the research priorities in Iran. Therefore, this study aimed to explain parents' experiences in explaining their concerns about the future of the child in life. Materials and Methods: This qualitative study was performed on the parents of autistic children referred to Yas and Nahal rehabilitation centers in Arak and Ahvaz. A total of 8 parents of children with autism were enrolled in the study using purposeful sampling method. Data were collected by semi-structured interviews and field notes and analyzed using MAXQUDA10 software. Results:  The results of the data analysis have led to the emergence of three main categories "self-sufficiency and independency in life", "transition to adolescence" and "child education and learning", which outlines the different dimensions of parental concern related to the child in the future life. Discussion and Conclusion: Based on the results of this study, designing, organizing and implementing effective and efficient interventions in educational, therapeutic, rehabilitation, welfare, legal and social areas appropriate to the developmental stages of the child, with the aim of responding to the needs of people with autism spectrum disorders and their families are increasingly needed in the successful transition to the adulthood and  maintaining and promoting their well-being.